The phrase that hurts more than my ailments.
Having gone through Hell trying to get a diagnosis was almost unbearable. Not having an answer ate me alive. But then I got the answer I sought for so long. I initially felt relief; then I spiraled. Fibromyalgia. On top of all my other ailments. This wasn't going to vanish, and coming to terms with … Continue reading Importance of a strong support system.
For months I was in indescribable pain that waxed and waned but never entirely lessened it's grip on my body. I'm 24 but feel much older as I try to come to terms with my new lifestyle. I refuse to say boundaries because I'd rather view this as a chance to live more creatively instead … Continue reading I got diagnosed with fibromyalgia two months before my wedding.
Recently I met with my new rheumatologist. I was filled with anxiety and dread, praying I'd for once be taken seriously. Fortunately he was kind and informative. I felt relieved by his demeanor. Professional yet warm. However when I received my diagnosis I was not met with the relief I expected an answer to provide. … Continue reading Coming to terms with a new diagnosis.
It's okay to love your body no matter what your clothing size tells you.
Why I'm grateful to people in the medical field.
Here I am at 4:14 am, still awake due to flare. My joints are red and hot to touch. My muscles ache as if I've run a marathon. I have a migraine and no amount of Tums are helping my nausea. Chronic illness sucks. Let's just be honest. Everyone wants us to blither on about … Continue reading When you can’t sleep from pain.
Why hard days are okay and how to get through them.
Due to some health issues I lost my hair. As a 24 year old woman one can imagine this is traumatic not to mention the illness itself taking a toll. I got a new wig today though and I'm in love! Some days I just embrace being bald but I occasionally want hair for a … Continue reading So my hair fell out but it’s okay.
Due to the recent diagnosis of Rheumatic Fever and perhaps some other autoimmune disease, all while being on bed rest, I have felt isolated and as if I haven't been living up to my potential. I've been stuck home, have lost friends due to chronic illness, and thought maybe my life would forever lack excitement. … Continue reading Finding adventure with limiting circumstances.